This patient led community inquiry project was conducted through a partnership between the ME/FM Society of BC, the Complex Chronic Diseases Program at BC Women’s Hospital + Health Centre, and the Women’s Health Research Institute. The project was funded by the Vancouver Foundation through the Convene competition.
Understanding the explicit needs of British Columbians living with Myalgic Encephalomyelitis (ME) is critical to informing research that improves patient health outcomes. Robust evidence ensures health and social services are designed and delivered effectively and appropriately to the ME community, which includes patients, clinicians, and health care decision makers.
The primary focus of this project was to plan for a health needs assessment on ME/CFS in the province of British Columbia. A secondary objective was to conduct a preliminary assessment of the needs/ barriers to service provision and challenges in health service delivery to ME patients across British Columbia (BC).
